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Feb 23 2021 MS Living Well Podcast 16: Progressive Multiple Sclerosis

Mark Webb, wheelchair rugby player and Head of Communications for Shift.ms

Progressive multiple sclerosis can be a worrisome diagnosis, filled with questions about one’s personal future including independence. In this podcast, Mark Webb shares his personal story of transition to secondary progressive multiple sclerosis with brilliant humor, incredible resiliency and tenacious optimism. He explains how MS has affected his career from Euro Disney to Head of Communications at Shift.ms, a global online MS community. He candidly describes the impact of the disease on his functioning including cognition, mobility and bladder and how he has adapted to these obstacles. Mark reflects on his acceptance of progressive MS and emphasizes his motivation to make a difference for himself, his family and the MS community.

Dr. Gavin Giovannoni describes in the podcast primary progressive MS (PPMS), secondary progressive MS (SPMS) and active secondary progressive MS and whether or not these are truly different conditions. He moves beyond labels and explains that people with progressive disease, even those with limited mobility, can still be at risk of relapses affecting vision and arms. Continuing, switching or stopping disease-modifying therapy in progressive multiple sclerosis patients are covered. The impact of early MS damage, aging and ongoing, smoldering inflammation on progressive disease is described. Progressive multiple sclerosis treatments in clinical trials are highlighted including masitinib, BTK inhibitors, ibudilast, simvastatin, biotin, lipoic acid and remyelination strategies.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Mark Webb

Mark Webb is Head of Communications for Shift.ms, an online community of over 38,000 people living with MS. Mark lives with secondary progressive multiple sclerosis and first developed MS symptoms back in 1992. He’s a blog writer: One Man and His Catheters, public speaker and rugby wheelchair player. Mark lives in the U.K. with wife and 2 sons.

Dr. Gavin Giovannoni

Gavin Giovannoni MBBCh, PhD, FCP, FRCP, FRCPath is the Chair of Neurology of the Blizard Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry at Queen Mary University of London. Professor Giovannoni completed his medical training and neurology training in South Africa. In addition, he completed a PhD in immunology from the University of London in 1998.  He is particularly interested in clinical issues related to optimizing MS disease modifying therapies including progressive disease.

Feb 9 2021 MS Living Well Podcast 15: Multiple Sclerosis Numbness & Pain: Relief Options

Photo: Rafal Szczawinski on Unsplash

People living with multiple sclerosis often experience chronic numbness, burning, tingling and pins-and-needles sensations.  In a recent study, 70% of people with MS reported numbness and tingling and 55% reported pain associated with relapses.  MS neurologists explain typical symptoms for brain and spinal cord MS attacks compared to a pinched nerve in the back (like sciatica) or neuropathy.  Lhermitte’s sign (shocks down the spine when moving neck) and Uhthoff’s phenomenon (symptoms like numbness when overheated) are covered since frequently the first symptoms of multiple sclerosis. Options for relief from burning, tingling and pins-and-needles reviewed including medications such as Neurontin (gabapentin), Lyrica (pregabalin), Elavil (amitriptyline) and Cymbalta (duloxetine).

Painful MS syndromes including trigeminal neuralgia, MS hug and flexor and extensor spasms are individually reviewed with numerous specific treatment options.  MS experts also share options to alleviate painful muscle cramps and spasms as well as musculoskeletal pain such as low back pain.  The podcast aims to provide awareness and options for relief so that people living with MS can better communicate with their doctors to improve their care.

Barry Singer MD, director of The MS Center for Innovations in Care, interviews:

Mitzi Joi Williams MD

Mitzi Joi Williams, MD is the Founder and CEO of Joi Life Wellness Group Multiple Sclerosis Center.  She completed her undergraduate degree in neuroscience and behavioral biology at Emory University and her medical degree at Morehouse School of Medicine in Atlanta, Georgia.  Dr.  Williams subsequently did her neurology residency (including serving as chief resident) and multiple sclerosis fellowship at Georgia Health Sciences University (formerly MCG) in Augusta, GA.  She is the author of MS Made Simple: The Essential Guide to Understanding Your Multiple Sclerosis Diagnosis.

Brandon Beaber MD

Brandon Beaber MD is a neurologist specializing in multiple sclerosis at Kaiser Permanente in Los Angeles.  He completed his undergraduate degree from University of California-Berkley followed by Medical School at Drexel University in Philadelphia. He completed his neurology residency at Kaiser Permanente’s Los Angeles Medical Center (LAMC) and fellowship in multiple sclerosis and neuroimmunology at University of Southern California.  He authored Resilience in the Face of Multiple Sclerosis and regularly posts educational videos for people living with MS on his YouTube channel.

Jan 26 2021 MS Living Well Podcast 14: Multiple Sclerosis & Vaccines including COVID-19

Dr. Anne Cross, MS Living Well podcast guest, receiving 1st COVID-19 mRNA vaccine. Christian Gooden/Post-Dispatch

Vaccinations have been extremely effective in saving people from numerous fatal diseases such as measles, polio, hepatitis B, diphtheria and tetanus. Currently, the COVID-19 pandemic has been raging with almost 100 million people affected and over 2.1 million people dead. We again turn to our medical researchers. Recently available COVID-19 vaccines provide new optimism.  People living with multiple sclerosis have numerous questions regarding whether these COVID-19 vaccines against the SARS-Cov-2 virus are safe and effective for them. Both mRNA and adenovirus COVID-19 vaccines are explained on this podcast and concerns regarding vaccinating MS patients addressed.

The podcast covers types of vaccines people with multiple sclerosis should avoid and which vaccines are safe. The question whether vaccines can trigger MS attacks is tackled. Vaccines for measles-mumps-rubella (MMR), chicken pox (varicella), hepatitis B and influenza (flu) are individually reviewed.  Multiple sclerosis disease-modifying therapies (DMTs) can suppress the immune system and potentially impact whether a vaccine will be protective or not. Existing info on each MS medication type is discussed. Timing of vaccinations and medication dosing strategies covered such as for Ocrevus (ocrelizumab), Lemtrada (alemtuzumab) and Mavenclad (cladribine). Vaccines as a strategy to prevent or treat multiple sclerosis are explored; Epstein-Barr virus and BioNTech’s mRNA vaccine are considered.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Dr. Anne Cross          Photo: Matt Miller

Anne Cross MD is Professor of Neurology at Washington University in St. Louis and Dr. John Trotter MS Chair in Neuroimmunology. She did her neurology residency at George Washington University and multiple fellowships including at the Neuroimmunology Branch at NIH, at the Department of Virology/Molecular Biology at St. Jude Children’s Research Hospital in Memphis and in the Neuropathology Department at Albert Einstein College of Medicine in New York.  Her leading work in B cells in multiple sclerosis was recently recognized with the 2019 John Dystel Prize for MS Research.

Dr. Amit Bar-Or

Amit Bar-Or MD, FRCP, FAAN, FANA is Professor of Neurology at University of Pennsylvania Perelman School of Medicine.   He serves as Director of the Center for Neuroinflammation and Neurotherapeutics and Chief of the Division of Multiple Sclerosis and Related Disorders. He completed his undergraduate degree at McMaster in Hamilton, Ontario, Canada and medical degree from McGill University in Montreal, Canada. His neurology training was at Massachusetts General Hospital and fellowship at Brigham and Women’s Hospital, both Harvard Medical School programs.  Dr. Bar-Or’s research focuses on neuroimmune health and central nervous system inflammatory diseases across the age span. He runs a cellular and molecular neuroimmunology lab studying principles of immune regulation and immune-neural interaction in the context of injury and repair of the human central nervous system.

Nov 28 2020 Does my MS medication affect my ability to respond to vaccines?

Image: Fusion Medical Animation on Unsplash

Background:

Our immune system includes a type of cell called lymphocytes. T lymphocytes target other cells such as cells infected with viruses or cancerous cells. They are called “T” cells since they mature in the thymus gland in the upper chest. Normally T cells that would attack our own cells are destroyed in the thymus gland before being released into the circulation. In autoimmune diseases such as multiple sclerosis, these T cells escape and can lead to the immune attack on myelin.

B cells mature in the bone marrow in humans, but were named after a specialized organ where B cells mature in birds known as the bursa of Fabricius. B cells can change into plasma cells which make antibodies. Antibodies are like targeted arrows that can help attack germs such as viruses or bacteria that are invading our bodies. In multiple sclerosis, B cells turn against their human by creating antibodies that attack myelin and revving up autoimmune T cells.

Role of T and B cells in Vaccination:

Vaccines work by imitating a serious infection. Vaccines can cause minor symptoms, but do not cause the actual disease. The vaccine triggers the development of specific-targeted T and B cells that remember the infection. When someone is then exposed to the real life-threatening virus or bacteria in the future, they can mount a highly effective defense against the infection due to these “memory” T and B cells. For example, children are vaccinated with a weakened, live chicken pox virus called the varicella-zoster virus. The immune system then develops T cells and antibodies specific for this varicella virus. The vaccine has been shown reduce the risk of getting chicken pox later in life by 92%. If someone is immunosuppressed, important to avoid live, weakened (attenuated) viruses.

Most vaccines are inactivated vaccines which means they do not contain live viruses or bacteria. Vaccines that inject killed whole virus include polio, hepatitis B and rabies.  Many inactivated vaccines include only sugar molecules (polysaccharides) that are found on the surface of bacteria or surface proteins that are found on viruses. These components of the infectious agent lack the ability to replicate since they do not contain disease-spreading genetic material (RNA or DNA).

COVID-19 vaccines:

For COVID-19, the Pfizer and Moderna vaccines are mRNA vaccines. The mRNA contains instructions for our own body to make a harmless “spike” protein.  This spike protein is on the surface of the COVID-19 virus. The spikes on the surface of this COVID-19 coronavirus creates a “corona” (derived from the latin word for crown).  The mRNA is surround by a lipid (fatty) nanoparticle that allows it to enter cells of the body when injected in the muscle.  Once mRNA is in the cells, the cells can create their own spike proteins on their surface. The body’s immune system that reacts to these foreign spike proteins leading to immunity with memory T and B cells.  These COVID-19 vaccinations result in a robust immune response to this spike protein that provides up to 95% immunity from the real COVID-19 infection, caused by the SARS-CoV-2 virus.

The AstraZeneca and Sputnik V vaccines use a type of virus called an adenovirus to insert DNA into the cell nucleus.  The double-stranded DNA does not get into our own DNA, however.  The DNA strand allows the cell to also make only the spike protein.  The DNA in the adenovirus has been altered so the adenovirus lacks to the ability to replicate (divide) in the body.

Disease-Modifying Therapies (DMTs) and Response to Vaccines:

All decisions regarding taking a vaccine with multiple sclerosis should be made in consultation with your healthcare providers.  

Multiple sclerosis medications can impact your body’s ability to mount an immune response to a vaccine. Most trials looking at responses to vaccines in MS patients measure antibodies in the blood which is driven by B cell immune response. You may be able to mount an effective T cell response to a virus, but much harder to measure. Different MS medications (DMTs) might weaken your ability to develop a protective level of immunity from a vaccine.  In a study of 152 people performed in Norway, protection against H1N1 flu virus at 6 months post-vaccination occurred in 86% of those MS patients treated with Copaxone (glatiramer acetate), 84% of patients on interferon, 58% on Gilenya (fingolimod) and 75% on Tysabri (natalizumab) and 94% of healthy people not on MS medications.

Live, weakened virus vaccines should be avoided on many multiple sclerosis DMTs including Ocrevus (ocrelizumab), Kesimpta (ofatumumab), Gilenya (fingolimod), Mayzent (siponimod), Zeposia (ozanimod) and Mavenclad (cladribine) per their prescribing information. At this point, the leading vaccines for COVID-19 do not contain live, replicating virus. The impact of each DMT on the protective response to COVID-19 vaccination is unknown. Both antibodies and T cell responses likely play a role in being fully vaccinated again the COVID-19 virus.

Below are some of the trials that have looked at vaccine responses to DMTs (Link for full review):

Aubagio (teriflunomide): The TERIVA trial examined flu vaccine responses to both Aubagio and interferon beta-1.  Effective vaccination based on antibodies was 97% to the flu-vaccine for H1N1 and B strains and 77% for H3N2.

Tecfidera (dimethyl fumarate): In another study of 71 MS patients (38 on Tecfidera and 33 on interferon), antibody response to specific pneumococcal strain vaccines was 84-95% on Tecfidera and 88-97% on interferon.  47% of MS patients on Tecfidera and 42% of patients on interferon made protective antibody levels at 4 weeks to a meningococcal vaccine.

Gilenya (fingolimod):  A trial of 138 MS patients randomized to placebo or Gilenya for 12 weeks to examine response to a seasonal flu vaccine.  54% of MS patients at 3 weeks after the flu vaccine mounted a protective antibody response on Gilenya while 85% on placebo.  At 6 weeks post-vaccination,  43% of Gilenya-treated patients made a response but 75% on placebo.

Interferons (class includes Avonex, Betaseron (Betaferon), Rebif, Extavia and Plegridy):  As above, the TERIVA trial examined flu vaccine responses to both interferon beta-1 and Aubagio. Effective flu vaccination based on antibodies occurred in 91-98% of multiple sclerosis patients depending on the flu strain.

Mayzent (sipinomod): Flu vaccination was studied prior to Mayzent treatment, during treatment and with treatment interruption in 120 healthy volunteers.  For Influenza A California strain,  protective antibody levels occurred in 86.7% of subjects on placebo, 92.9% vaccinated preceding Mayzent, 74.1% during Mayzent treatment and 71.4% with interrupted Mayzent treatment. For Influenza B Massachusetts strain, response rates were much less: 43.3% on placebo, 50.0% preceding, 25.9% during and 28.6% on interrupted Mayzent treatment.   100% of subjects immunized with pneumococcal vaccination prior or during Mayzent 2 mg treatment mounted protective antibody levels.

Ocrevus (ocrelizumab):  In the VELOCE trial, MS patients exposed to various vaccines were studied.  Flu-virus antibody responses were 56% to 80% on Ocrevus while 75-90% on placebo or interferon.  In addition, antibody response rates to pneumococcal vaccination was reduced.  Antibody (humeral) responses to vaccines rely on B cells and plasma cells.

Jul 16 2020 MS Living Well Podcast 13: Taking Charge of Multiple Sclerosis

 

Photo (cropped): Leon Ell’ on Unsplash

Being diagnosed and living with multiple sclerosis is often overwhelming. Your MS journey might be challenging, frustrating and depressing at times.  On the bright side, superb MS care is available. This podcast lays out ways that you can take charge of MS and get the care you deserve.  Topics include finding the right neurologist for you and how to get reliable MS information.  Improve your communication with your doctor regarding worsening symptoms, progressive disease, MRI imaging and medication risks.  Making shared decisions regarding treatment with your neurologist highlighted.  If you feel more comfortable sticking with the treatment plan called “adherence,” you will be better off in keeping your MS in check. Financial assistance for treatments, MRI and office visits outlined. Expert information reviewed on diet, vitamin D, smoking, alcohol and exercise.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Cathy Chester

Cathy Chester was diagnosed with multiple sclerosis in 1986 and has become a leading national MS patient advocate.  Cathy is a graduate of Boston College with a Bachelor of Arts in English and Business and The Alfus Patient Advocate Certificate Program at The University of Miami.  Cathy’s An Empowered Spirit was named Top Health Blog by Healthline and Top Multiple Sclerosis Blog by Healthline and WEGO Health for several years. Cathy is a regular contributor to MultipleSclerosis.net and Multiple Sclerosis News Today.

Bhupendra Khatri MD

Bhupendra Khatri MD is the founding medical director of the Regional MS Center of the Center for Neurological Disorders in Milwaukee, one of the largest multiple sclerosis centers in the U.S. Dr. Khatri completed his residency in neurology at the Medical College of Wisconsin and fellowship at University of California in San Francisco.  He has been a principal investigator in numerous clinical trials, as well as an invited speaker at both national and international conferences. He has published over 55 papers in peer-reviewed journals and has contributed chapters to six books. In 2015 he was honored with the National Multiple Sclerosis Society Lifetime Achievement Award.  He is an accomplished book author and published the award-winning bestselling book, “Healing the Soul, Unexpected Stories of Courage, Hope and the Power of Mind.”

Jul 2 2020 MS Living Well Podcast 12: Overcoming Multiple Sclerosis Fatigue

Photo: Jen Theodore on Unsplash

Struggling with MS fatigue? You aren’t alone. Approximately 90% of people living with multiple sclerosis deal with fatigue. An overwhelming sense of tiredness can be disruptive at work and take away from your family time and social life. This podcast dives into the different causes of MS fatigue including disease impact on nervous system, medications and poor sleep.  Approaches to improve both mental and motor fatigue are highlighted including energy conservation strategies, exercise and workplace changes.  Fixing sleep issues can substantially help fatigue. Treatment options reviewed for causes of poor sleep including anxiety, restless legs, leg cramps, need to urinate overnight and sleep apnea.  Medication options for MS fatigue are reviewed including amantadine, modafinil, armodafinil and amphetamines.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Randy from Must Stop MS!

Randy from Must Stop MS!  was diagnosed with multiple sclerosis in November 2012.  Initially he was worried about his future: wheelchair? providing for his family?  Knowing how he felt after the diagnosis led him to become an advocate for this disease. He started Must Stop MS! on Facebook to provide support, new information regarding MS, and to raise awareness of the disease. Must Stop MS! quickly spread to Twitter and Instagram.  He started a weekly Twitter chat named #ChatMS that occurs every Monday at 7pm EST.  His mission is to bring the MS community together to help raise awareness, support each other, and provide hope.  Randy won’t stop until “we get that cure we all need.”

Enrique Alvarez MD PhD is an Assistant Professor of Neurology at the University of Colorado School of Medicine and cares for patients multiple sclerosis patients at the Rocky Mountain MS Center.  He was a graduate of the Medical Scientist Training program at the University of Colorado Denver and completed his neurology residency and neuroimmunology fellowship at Washington University in St. Louis.  He has a special interest in using biomarkers to customize treatments and patient care

Enrique Alvarez MD PhD

Jun 18 2020 MS Living Well Podcast 11: Sex and Multiple Sclerosis

Photo: Jeremy Banks on Unsplash

Sexual health is an important part of quality of life for many people.  Multiple sclerosis can cause new challenges and disrupt sexual relationships.  Positioning options, including pillows and slings, are reviewed that can help overcome weakness and stiffness of legs.  Factors that can be reduce a woman’s libido, or sexual drive, are addressed such as medications and hormone levels.  Ways to achieve a satisfying sexual relationship with disability from multiple sclerosis are discussed in terms of intimacy and foreplay.  Detailed solutions are presented such as stimulation and lubrication to overcome decreased or painful sensations with intercourse.

Up to 40% of men with multiple sclerosis can have low testosterone which can decrease libido.  An array of testosterone replacement options highlighted depending on whether a man still wants to father children or not.  Erectile dysfunction treatments discussed in depth including oral pills, intra-urethral suppositories, self-injection therapies, vacuum erection devices and penile implants.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Heather Raznick MSW LCSW

Heather Raznick MSW, LCSW is a psychotherapist in clinical practice in St. Louis. She obtained a Masters in Social Work from Washington University. She trained at the world-renowned Masters and Johnson Institute, where she studied clinical sex therapy under the direct supervision of legendary sexologist Dr. William Masters.  She provides academic and clinical training to residents and medical students as well as lectures at several area hospitals.  Heather shares her expertise on sexuality and wellness with community groups and organizations. She also frequently appears on radio interviews and television programs as a guest expert.  She is a member and has received certifications in multiple organizations including American Association of Sex Educators, Counselors and Therapists and the International Society for the Study of Women’s Sexual Health.

Etai Goldenberg MD

Etai Goldenberg MD  is the Director of Men’s Health at Urology of St. Louis.  Dr. Goldenberg completed his undergraduate degree at University of Michigan and medical school at Wayne State University School of Medicine in Detroit. His urological surgery residency was obtained at Washington University in St. Louis.   In addition, he completed a fellowship in male reproduction and sexual health at the Smith Institute for Urology in New York City.  He specializes in male sexual health, male reproduction, microsurgery, prosthetic urology and testosterone replacement.

 

Jun 4 2020 MS Living Well Podcast 10: Bladder Strategies for Multiple Sclerosis

Photo: Juan Marin on Unsplash

Trouble with your bladder? Most people with multiple sclerosis have bladder issues. Penelope shares her personal bladder challenges with urgency, trouble emptying her bladder and use of catheters. Rather than being embarrassed, Penelope gives advice on when to speak up to get needed medical care and how to cope (laughter helps). Dr. Travis Bullock then explains what happens to the bladder in MS. Treatment strategies for bladder urgency reviewed including pelvic exercises, medications and Botox injections. Options for trouble emptying bladder highlighted including self-catherization and suprapubic catheters. Ways to reduce frequent urinary tract infections (UTIs) discussed including methenamine, d-mannose and cranberry tablets.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Penelope of Positive Living With MS

Penelope is the author and founder of Positive Living with MS where she uses humor and her own life experiences with MS to help others navigate this unpredictable journey.

Travis Bullock MD is a urologist with expertise in multiple sclerosis at Urology of St. Louis.  He completed his urologic surgery residency at Washington University School of Medicine in St. Louis and fellowship in Female Urology, Neuro-urology and Pelvic Floor Reconstruction at the Center for Continence Care and Female Urology at Metropolitan Urologic Specialists in Minneapolis, Minnesota.

Travis Bullock MD

May 21 2020 MS Living Well Podcast 9: Cognition and Multiple Sclerosis

Photo: Christina @ wocintechchat.com on Unsplash

This podcast explores cognitive issues in multiple sclerosis. Caroline Craven aka The Girl With MS shares the impact of MS on her short-term memory, word-finding ability and multitasking skills. She talks about the role of stress, sleep and mood have on her cognition.  Caroline reviews how she copes with these changes partially through diet, exercise and good sleep.  Abbey Hughes PhD, a rehabilitation psychologist from John Hopkins, outlines ways to deal with memory and multitasking obstacles for those living with MS.  Strategies to help cognitive functioning are shared including task completion tips, journal use, brain empowering apps, speech therapy, stress reduction and depression control.  Screening tools to check for cognitive problems such as brain processing speed reviewed.  MS brain changes and key ways to maintain brain health and better cognition emphasized.

Barry Singer MD, Director of The MS Center for Innovations in Care interviews:

Caroline Craven aka The Girl with MS is a certified life coach, writer and motivation speaker. Her writing focuses on articles in health journalism and highly rated blog. Her blog post topics range from personal experiences, research-based articles, recipes, life hacks and resources.

Caroline aka The Girl With MS

Abbey Hughes PhD is a clinical psychologist with expertise in rehabilitation psychology and multiple sclerosis rehabilitation.  She is an Assistant Professor of Physical Medicine and Rehabilitation at John Hopkins.  Her clinical and research interests include the assessment, treatment and management of psychological and cognitive difficulties associated with multiple sclerosis including adjustment to disability, sleep disturbance, fatigue, depression, anxiety, and problems with thinking or memory.

Abbey Hughes PhD

May 16 2020 Getting Multiple Sclerosis Care when Unemployed or Furloughed

Cropped Photo: Christopher Lemercier on Unsplash

Multiple sclerosis causes anxiety for many people living with the condition. With the COVID-19 pandemic, added anxiety comes from people with MS or their family members being furloughed or terminated from employment. How am I going to stay on my medications or afford them? Will I still be able to see my doctor if I lose my health insurance? How can I pay for an MRI scan?

In United States, the disease-modifying medications are generally free for those patients without insurance or underinsured if not on government insurance (Medicare or Medicaid). Your healthcare provider simply needs to submit a prescription (called a service request form or SRF) to the pharmaceutical company that makes the MS medication to access the financial assistance. These programs have no co-pay if you qualify and apply to people already on a specific disease-modifying MS medication or starting a new medication.

For those people on Medicare, independent charitable patient assistance programs can help with co-pay assistance since the U.S. government does not allow the pharmaceutical companies to provide medications with no co-pay. The pharmaceutical company that makes your medication can help you figure out which patient assistance programs to apply for co-pay assistance. If your income is too high, you may not qualify for patient assistance with Medicare (which tends to occur when retirement income is too high or the person with MS is on Social Security Disability while their spouse working).

To cover medications, doctor visits and medications, Medicaid might be an option if you financially qualify depending on your own state’s requirements. Most large healthcare organizations offer charitable care for those in need which generally requires an application to coverage/assistance for doctor appointments, medication infusion costs and MRI scans.

The best resource for MRI scans is the MSAA MRI Access Fund. There’s an online application for free MRI scans of the brain and cervical spinal cord for people with multiple sclerosis or in the process of trying to diagnose MS. The MSAA can also help with MRI scan costs of completed scans. The MSAA MRI Access Fund is supported by Biogen and Sanofi Genzyme.  MSAA also has durable medical equipment assistance for items from cooling vests to wheelchairs.

A great resource for medication cost savings for medications is GoodRx. After entering the medication name and your ZIP code, a list of pharmacies and price at each pharmacy is listed plus coupons are generated. GoodRx can save hundreds of dollars on a single medication in one month.

Another option is participating in a clinical trial. Most relapsing clinical trials currently do not involve placebo so you would receive active treatment, although may be experimental.  MRI scans, study visits, labs and sometimes transportation costs to centers are covered by the study and free to MS patients participating in the trial.

Never assume you don’t have options. Please reach out to your healthcare team who are committed to keeping you on track for your MS care!