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Archive for ‘Podcasts

Nov 7 2019 MS Living Well Podcast 6. Pregnancy & Multiple Sclerosis

Photo: @freestocks-org on Unsplash

Multiple sclerosis experts share invaluable information regarding pregnancy and multiple sclerosis.  The podcast covers pregnancy planning for a healthy baby while minimizing risk of multiple sclerosis disease activity.  Topics of unplanned pregnancies, birth control and role of high-risk obstetricians addressed.  Infertility and the role of in vitro fertilization in woman with MS covered. Genetic risks to children and pros and cons of nursing addressed.  Information for men who want to father children reviewed.

 

Clarie Riley, MD

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:

Claire Riley, MD  is the Director of the Multiple Sclerosis Center at Columbia University Irving Medical Center since January 2012 and an Assistant Professor of Neurology.  She earned an undergraduate degree from Dartmouth College and a medical degree from Vagelos College of Physicians and Surgeons (VP&S) at Columbia University. She completed her residency in neurology and 2-year clinical fellowship in multiple sclerosis at Columbia University Irving Medical Center. She was previously an attending neurologist and assistant professor in the Yale MS Center in New Haven, CT. Dr. Riley regularly teaches medical students, residents and fellows in the MS clinic. She is also an investigator in clinical trials related to multiple sclerosis.

Amy Perrin Ross, APN

Amy Perrin Ross, APN, MSN, CNRN, MSCN is a board certified neuroscience nurse and the Neuroscience Program coordinator at Loyola University Medical Center in Maywood, IL. She obtained her BSN and MSN from Loyola University Marcella Niehoff School of Nursing, Chicago, IL. As an advanced practice nurse, she coordinates the multiple sclerosis clinic at Loyola University Medical Center in Maywood, Illinois. In her role at Loyola, she has coordinated multiple clinical research trials in multiple sclerosis. She is a Past President of the International Organization of Multiple Sclerosis Nurses. She has authored numerous articles and book chapters on multiple sclerosis.  In addition, she has served as a clinical nurse consultant with the National Multiple Sclerosis Society, a member of the Health Care Advisory Council for the Multiple Sclerosis Association of America, and a board member of the Consortium of Multiple Sclerosis Centers. She has been an invited speaker at national and international meetings and conferences and has been very active in neuroscience clinical research for over 20 years.

 

Oct 24 2019 MS Living Well Podcast 5. Inside Angle: Partnering with Your Neurologist

Flavia Nelson, MD

Multiple sclerosis experts share advice on how to substantially improve your care when interacting with your neurologist. Key insights to develop trust and understanding with your doctor reviewed. Compelling info to help you advocate and communicate your desires and needs. Specific ways to make the most of your appointments addressed. Difficult questions are tackled such as progressive disease and long-term planning. Managing MS symptoms and wellness highlighted. Benefits of reviewing MRI images in the exam room outlined. Excellent tips on how to access free medication and MRI programs for people who are uninsured or have high out-of-pocket costs.

Timothy West, MD

Barry Singer MD, Director of The MS Center of Innovations in Care at Missouri Baptist Medical Center interviews:

Flavia Nelson MD, Associate Professor of Neurology, Director Multiple Sclerosis Division at University of Minnesota in Minneapolis. She completed her residency and multiple sclerosis fellowship at University of Texas Health Science Center in Houston, Texas.  Dr. Nelson has served as Chair of Department of Defense Panel for Multiple Sclerosis Research Program, committee member on Consortium of MS Centers MRI Guidelines Committee and Chair of International Advisory Board on Brain Atrophy and MS (2016).

Timothy West MD, MS Neurologist, Rocky Mountain Multiple Sclerosis Clinic in Salt Lake City, Utah.  Dr. West completed medical school at the University of California-San Francisco (UCSF) and fulfilled his residency in neurology at UCSF. He has had extensive experience and research in the area of MS, including at the Cleveland Clinic Lou Ruvo Center for Brain Health in Nevada, the Sansum Clinic in California, and the UCSF MS Center in California.

 

 

Oct 10 2019 MS Living Well Podcast 4: Cannabis & MS

Photo by Get Budding on Unsplash

Multiple sclerosis often causes nerve pain with burning and pins-needles sensations and spasticity associated with muscle tightness and cramping.  The specific role of medical marijuana components including THC and CBD in MS in alleviating these MS symptoms addressed.  Information regarding which MS patients are more likely to benefit from cannabis are reviewed in depth.  Risks and concerns of cannabis use in MS addressed.  All national, state and local laws should always be followed.

Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews:

Allen Bowling, M.D., Ph.D. , MS neurologist at the Colorado Neurological Institute, Denver, Colorado

Jacob Sosnoff, Ph.D., Associate Professor in Department of Kinesiology and  Community Health, University of Illinois at Urbana-Champaign.

Subscribe to the MS Living Well Podcast series at Apple Podcasts or Spotify.

Allen Bowling, MD, PhD

 

Jacob Sosnoff,,PhD

Sep 26 2019 MS Living Well Podcast 3. Country Living with Multiple Sclerosis: Improving Rural Care

Photo by Jaelynn Castillo on Unsplash

 

Country living far from large cities has wonderful advantages, but can present some unique challenges to receive optimal multiple sclerosis care.  This podcast addresses when it’s time to drive to see a MS specialist.  MS experts share their wisdom on various strategies to access the most current treatments while still enjoying life in countryside from the plains to the mountains.  Creative ways of coordinating care between local heathcare providers and MS specialists in MS centers described.  Emerging telemedicine options reviewed to get remote care.

Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews:

Susan Scarberry, MD, Sanford Medical Center, Fargo, North Dakota. Clinical Associate Professor of Medicine at the University of North Dakota School of Medicine and Health Sciences.

Gabriel Pardo, MD, Director, OMRF Multiple Sclerosis Center of Excellence, Oklahoma City.

Subscribe to this MS Living Well Podcast Series on Spotify or Apple Podcasts

 

Dr. Susan Scarberry

Dr. Gabriel Pardo

Sep 3 2019 MS Living Well Podcast 2. Remyelination: Repairing Multiple Sclerosis

A single oligodendrocyte “oligo” (colored green) making new myelin on a micropillar (white cone). Cover image by Michael Devereux and Jonah R. Chan. Journal of Neuroscience, Vol. 36, Issue 30, 27 Jul 2016

Remyelination: Repairing Multiple Sclerosis

Myelin is the coating on the nerve cells (neurons) of the nervous system that allows messages to travel rapidly in our body.  Myelin wrapped around the neurons also keeps neurons healthy.  In multiple sclerosis, the immune system attacks myelin disrupting electrical signals and making neurons vulnerable to chronic damage.  Remyelination  is the strategy to recoat the nerves with new myelin.  Myelin-making cells called oligodendrocytes (“oligos”) are described.  The podcast reviews recent laboratory breakthroughs in screening for new treatments to turn on immature oligos to repair myelin.  The exciting initial steps are presented regarding the transition from the laboratory research into clinical trials with multiple sclerosis patients.

Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews:

Ari Green, MD

Ari J. Green, MD, Chief of Division of Neuroinflammation and Glial Biology, Medical Director of the Multiple Sclerosis and Neuroinflammation Center, Debbie and Andy Rachleff Distinguished Professor of Neurology, Departments of Neurology and Ophthalmology, University of California San Francisco.

Subscribe to this MS Living Well Podcast Series on Spotify or Apple Podcasts

Sep 3 2019 MS Living Well Podcast 1. Winning Strategies in Multiple Sclerosis Treatment: Don’t Underestimate the Disease.

Photo: Neal E. Johnson on Unsplash

Treatment approaches to multiple sclerosis continue to change.  Over the past quarter of a century,  MS went from an untreatable disease to a disease responsive to a broad array of oral, intravenous and self-injected medications. Greater long-term disease control is now possible for more people living with MS.  However, undertreatment can result in significant physical disability including imbalance, weakness, visual loss, incontinence and pain and significant cognitive impairment including short-term memory loss, multitasking impairment and word-finding problems.  This podcast outlines different treatment strategies to maximize quality of life long-term to realize your individual goals with the least disability.  Information is presented on which people with MS might be at increased risk of disability and need early use of a highly effective medication. Treatment safety is weighed against the treatment benefits and risk of long-term disability.

Barry Singer MD, Director of The MS Center for Innovations in Care, interviews two amazing MS specialists who are also phenomenal patient advocates:

Heidi Crayton, MD

Heidi Crayton MD,  Director of The MS Center of Greater Washington in the Virginia suburbs of Washington, DC.  Dr. Crayton completed her neurology residency and multiple sclerosis fellowship at Georgetown University Hospital.  She is a national leader in MS treatment and clinical trial investigator.   For more on Dr. Crayton.

Aaron Boster, MD, is an MS expert at Ohio Health in Columbus, Ohio. Dr. Boster completed his neurology residency at the University of Michigan in Ann Arbor and a fellowship focused on clinical neuroimmunology and multiple sclerosis at Wayne State University in Detroit. Dr. Boster continues to be active in clinical research, authoring academic publications and lecturing globally.  For more on Dr. Boster.

Aaron Boster, MD

Subscribe to this MS Living Well Podcast Series on Spotify or Apple Podcasts

 

Nov 10 2018 Podcast: Multiple Sclerosis- Symptoms, Risk Factors and Wellness

Available now! Dr. Susanne Bennett on RadioMD interviews Dr. Barry Singer on the symptoms and signs of multiple sclerosis.  He discusses genetic and environment risk factors for MS.  Wellness including exercise addressed.  Impact of treatments on preventing disability reviewed.

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Dec 13 2012 New Video: Understanding My MRI

Don’t understand that MRI report?  Join the club.   T2 hyperintensities, T1 hypodensity, contrast enhancement, atrophy, black holes….   You don’t need an MD degree to learn the basics! This groundbreaking video will break it down in straightforward terms.  Empower yourself by being more informed about your MRI so you can make better decisions with your healthcare provider.  The end of the video addresses the impact of treatment on MRI activity.  If you find the video helpful, please share with a friend.

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